Caden is probably the most beloved member of our little family. Everyone loves Caden! Recently his personality has been coming out and it’s so much fun to watch. He’s been hitting so many milestones recently that I wanted to capture them so his someday forever family can look back with him and see what a little ham he was as a baby!
Caden’s language has been taking off recently! He babbles all the time and will scream to get our attention if he feels he isn’t getting enough. Right now his only word is mama or amma which he uses to get my attention. At night he sleeps next to my bed in a bassinet and some nights when I put him to sleep at 8 he is not interested in sleeping. I usually rock and sing to him for a couple of minutes and then do work in my bed until he falls asleep. The other night he was not happy that I was ignoring him and repeatedly called mama to get me to come play with him! He cries when he doesn’t get his way- like if he ayah walks out of the room and doesn’t take him with her. He also makes a popping noise with his mouth on demand- which is the cutest thing ever. Caden is blending sounds and it will be only a matter of time before he is saying other words!
Caden is the biggest ham! He has the smile we call the flirting smile- he catches someone’s eye from across the room and then turns his head down so you can see his beautiful lashes and eyes in all their glory. He is always happy as long as someone is playing with him. He loves to play peek-a-boo and with the shape sorter pieces. He thinks it’s so funny to throw the pieces of the shape sorter and then whine when they are out of reach. Caden is a bit of an Indian prince. He is quite spoiled by his ayah, the cleaning ladies, the cook, me, the other ayahs and the list goes on. Someone is always playing or talking to our sweet boy and he loves the attention. He is quite wary of men though- probably because he is surrounded by females all the time! I think Caden is going to grow up to be quite the ladies man, he is already an expert at wrapping people around his finger! For a while he was in a really bad stranger anxiety phase and would only go to me, his ayah, and if neither of us were there one of my other ayahs. He would scream every time he was set down and would not look strangers in the face. Although it’s a good sign that he shows attachment it was an exhausting phase. Luckily he seems to be growing out of it and will now interact more with people that his is familiar with.
Gross Motor is one area where Caden really lags behind. He is sitting up unassisted and hardly ever falls over anymore. He screams whenever I put him on his tummy- the longest tummy time I’ve ever got him to do was three minutes. Some of it might be pain, he usually has blisters or wounds on his chest area, but I think some of it is that he doesn’t like the position. He resisted sitting up at first so I think it will take him some time to warm up to the idea of tummy time. I can put Caden into a 4-point crawl and he will hold it for about ten seconds before screaming and refusing. When he is sitting up he will reach for toys outside his immediate surrounds but when he can’t get them he gives up. He doesn’t seem to have much motivation to crawl or explore his surroundings. Most kids with EB can walk so I’m hoping he will become more interested in crawling and walking in time. Right now it’s okay because my apartment is not exactly EB friendly to a little explorer!
Fine Motor and Playing Skills
Caden loves to play and manipulate objects. He loves his shape sorter toy and any toy that makes noise. He still does not have any teeth but I think part of it is because he doesn’t really mouth objects. He will play with them but they rarely go into his mouth. Caden will clap along with music or to imitate. At night time when we do prayer time he will do prayer hands if we ask him. The other night my ayah’s son Darren, Julie, and I were playing hide and seek behind the big curtain in the main room. Caden was sitting nearby and played along too- covering his face with his hands and cracking up when we “found” him. Caden loves to play with Darren, they will sit and play with toys together. Julie also likes to hold Caden although Caden is not as fond of Julie as she is of him! Caden cracks everyone up with his antics and expressions!
One thing we’ve noticed about Caden is that his skin tends to go in cycles. He will have a good week or two and then a bad week. Overall though his skin is looking good! During a typical daily dressing change he typically only has a couple of small blisters that we have to pop and most of his wounds heal at a good rate. Using Vaseline and Tubiafast has made a huge difference with his skin! Right now he gets a bath once a week. Ideally he would get one every other day but right now I’m trying to work it up to twice a week. I’ve found that introducing change slowly is the best way to get long term change for Caden. When the nurses who do his care discover for themselves that what they are doing makes a difference then they keep doing it- even on days when I’m not there to enforce it. Right now we are trying to source some cheaper options for Tubiafast and Mepiplex so if anyone has any ideas please let us know! We have to bring the specialty items over from the States and rely on donations to do that. This is not an ideal long term solution so we are trying to figure out some different options for times we either run out of donations or can’t get any new donations. Even during his dressing changes Caden is a happy baby. He rarely cries as long as he is distracted and is generally cooperative!
- Pray that a forever family will step forward for Caden. He needs to be adopted soon so he can receive quality medical care for the rest of his life. India is not an easy place to have EB and he needs more specialized care than we can provide
- Pray that we can continue to either receive donations that will keep Caden in his specialty wound supplies or find local alternatives that provide him with the same level of care
- Pray that he will develop no complications from his EB and that his skin will become ever stringer as he grows older
- Pray that Caden will become interested in crawling and walking and that we will be able to protect his skin when the time comes
Caden is such a joy to have in our family! Somewhere along the way he became my baby, my babu. He is very attached to me and I’m pretty protective of him. Whenever he is crying the ayahs always come get me and tell me my baby wants me. He is the cutest baby at SCH, in my opinion. I cannot wait to see what else he will accomplish over the years- I think the Lord has big plans for this little boy!
To receive access to the password protected blog post and see photos of Caden please email me at colleenawilliams22 at gmail.com